Beyond Batten Disease Foundation

beyond batten disease foundation works to cure and prevent batten disease, a rare, inherited neurological disorder that strikes young children, first causing vision loss and seizures, then cognitive and motor impairment, and ultimately death by the late teens or 20s. the foundation raises funds for research and is leading development of an easy and inexpensive, groundbreaking blood test to detect the gene mutations that cause batten disease as well as 600-plus, other rare but serious and often fatal childhood ailments. for more information, visit www.beyondbatten.org.