Spina Bifida Resource Network

the sbrn is a source of support and information and provides opportunities for the spina bifida community to connect on a personal level. our mission is to empower the lives of people living with spina bifida through direct service programs, advocacy, and providing information about the prevention of spina bifida. we are one of the few spina bifida organizations nationwide who provide direct nursing and social service coordination. spina bifida is the most common permanently disabling birth defect in the united states. it occurs in the first few weeks of pregnancy when the spinal column fails to completely form. this results in exposed meninges (nerve endings) and spinal fluid. the effects range in varying degrees of severity in paralysis, hydrocephalus, inhibited motor ability, incontinence, and a myriad of other developmental, cognitive, and physical challenges. for more information contact our office at info@thesbrn.org or call 908-782-7475. we welcome the opportunity to hear from y